LONI | MCSA Data Use Agreement

Mayo Clinic Study of Aging is a longitudinal, population-based study of residents of Olmsted County, Minnesota. The long-term goals of the Mayo Clinic Study of Aging are to develop tools to predict and prevent cognitive decline and dementia, develop risk-prediction models for cognitive impairment, and conduct aging-related research to promote successful aging. The MCSA has curated a subset of de-identified imaging and clinical data suitable for a wide range of research uses, and these are broadly shared with the greater scientific community in order to maximize its scientific benefit. The terms and conditions for use of this shared data are provided below.

Qualified researchers interested in opportunities to obtain additional clinical, medical history, biomarker, or neuroimaging data, biofluids, or specimens, beyond those shared in this dataset, can also submit a request to the Mayo Clinic Study of Aging's executive committee via the linked data use application. Each request is reviewed to determine eligibility.

Terms and Conditions

The recipient will receive only data has already been de-identified, including removal or replacement of any identifiable facial features in any applicable images. They shall not attempt to establish the identity of any MCSA participants or attempt to contact any participants. This includes, but is not limited to, any use of face recognition or 3D facial reconstruction. They will not contact MCSA staff about any specific results of individual participants. The MCSA is deeply grateful to all its participants for their selfless contributions to scientific research, and it is strongly committed to protecting their privacy.
This DUA prohibits any commercial application, but if commercial applications are desired, email mcsaadrcdatasharing@mayo.edu and these can be considered separately.
The recipient is prohibited from any redistribution of the data in any form, outside of their internal analysis teams. Other users are encouraged to apply for data access directly. The recipient will use appropriate administrative, physical, and technical measures to prevent any other use or redistribution of the data. The recipient is prohibited from selling or otherwise commercializing the data, or using it for marketing, fundraising, or any unlawful purpose.
The recipient must require anyone on their team (students, lab members, co-investigators, staff, etc.) with whom they share this data to comply with this data use agreement, and they will be responsible ensuring their compliance.
The recipient must comply with any rules and regulations set by their institution and its institutional review board in requesting and using this data, and they will follow any applicable laws in their country, state, or local governing body.
The recipient must acknowledge the use of MCSA data and data derived from MCSA data any abstracts, manuscripts, publications, and software distributions that make use of it. Details of these acknowledgements are described in a section below.
The recipient agrees to provide the Mayo Clinic Study of Aging with information on their use of MCSA data upon request.
Failure to abide by these data use terms may result in termination of the recipient's right to access and use MCSA data.

Requirements for Acknowledgements

Conference abstracts published using this data must specify "Mayo Clinic Study of Aging (MCSA)" as a data source. Multi-page "Conference proceedings"-style abstracts must follow the below guidelines for full-length publications.
Published manuscripts must include "Mayo Clinic Study of Aging" as a coauthor whenever allowed by the journal or publication. If, and only if, the journal or publication forbids this group- or consortia-authorship style, manuscripts must include "Mayo Clinic Study of Aging" within the manuscript title, instead. If both options are forbidden by the journal, the data recipient will not publish the data in that journal and choose another journal instead.
Published manuscripts must include the following statement as a footnote to the group-authorship if allowed by the journal, or in its Methods section if the footnote not allowed by the journal:
Data used in preparation of this article were shared by the Mayo Clinic Study of Aging (MCSA) (https://www.mayo.edu/research/centers-programs/alzheimers-disease-research-center/research-activities/mayo-clinic-study-aging/overview). The investigators and staff of the MCSA contributed to producing the shared data, but they did not participate in this study's design, its analyses, or the writing of this publication. The MCSA ensures only the scientific integrity of the data that it shared, but they did not review this publication and not responsible for its content.
Published manuscripts must include the following statement in the funding support acknowledgements section:
Data used in preparation of this article were shared by the Mayo Clinic Study of Aging (MCSA). The MCSA is funded by the following sources: NIH U01 AG006786, R01 AG034676, R37 AG011378, R01 AG041851, R01 NS097495, R01 AG056366, R01 AG068206, P30 AG062677, GHR Foundation, Elsie and Marvin Dekelboum Family Foundation, Liston Award, Schuler Foundation, Alexander Foundation, Mayo Foundation for Medical Education and Research.
Before submitting manuscripts to any journal, they must first be emailed to mcsaadrcdatasharing@mayo.edu for review. This review is only intended to ensure that the above requirements are implemented correctly; it is not a scientific review. MCSA will maintain confidentiality of the manuscript. If the authors do not receive an approval within 30 days, they may proceed with the submission.
Any public distribution of software making use of this data or its derivatives will also acknowledge the use of MSCA data with similar statements to those above in its README or similar applicable documentation.