LONI | ADNID Data Use Agreement

ADNID Data Use Agreement

I request access to data collected by the ADNI Depression Project (ADNI-D) for the purpose of scientific investigation, teaching or the planning of clinical research studies and agree to the following terms.
  1. I will receive access to de-identified data and will not attempt to establish the identity of, or attempt to contact any of the ADNI Depression subjects.
  2. I will not attempt to make direct contact with ADNI Depression PIs or staff at sites concerning the specific results of individual subjects.
  3. I will not further disclose these data beyond the uses outlined in this agreement and my data use application and understand that redistribution of data in any manner is prohibited.
  4. I will require anyone on my team who utilizes these data, or anyone with whom I share these data to comply with this data use agreement.
  5. I will accurately provide the requested information for persons who will use these data and the analyses that are planned using these data.
  6. I will respond promptly and accurately to annual requests to update this information.
  7. I will comply with any rules and regulations imposed by my institution and its institutional review board in requesting these data.
If I publish abstracts using data from ADNI Depression, I agree to the following:
  1. I will cite ADNI Depression as the source of data and the ADNI Depression funding sources in the abstract as space allows.
  2. Acknowledgement of ADNI Depression will not be cited in the authorship line of the abstract.
If I publish manuscripts using data from ADNI Depression, I agree to the following:
  1. On the by-line of the manuscript, after the named authors, I will include the phrase "for the ADNI Depression Project*" with the asterisk referring to the following statement and list of names:

    *Data used in preparation of this article were obtained from the ADNI Depression (ADNI-D) database (https://ida.loni.usc.edu/login.jsp?project=ADNID).As such, the investigators within the ADNI Depression Project contributed to the design and implementation of ADNI Depression and/or provided data but did not participate in analysis or writing of this report. A complete listing of ADNI Depression investigators can be found at: http://adni.loni.usc.edu/wp-content/uploads/how_to_apply/ADNI_Acknowledgement_List.pdf

    [For manuscripts that also use data generated by the Alzheimer's Disease Neuroimaging Initiative (ADNI) in the by-line of the manuscript, after the named authors, I will include the phrase "for the Alzheimer's Disease Neuroimaging Initiative**" with the double asterisk referring to the following statement and list of names:

    **Data used in preparation of this article were obtained from the Alzheimer's Disease Neuroimaging Initiative (ADNI) database (adni.loni.usc.edu). As such, the investigators within the ADNI contributed to the design and implementation of ADNI and/or provided data but did not participate in analysis or writing of this report. A complete listing of ADNI investigators can be found at: http://adni.loni.usc.edu/wp-content/uploads/how_to_apply/ADNI_Acknowledgement_List.pdf]

  2. I will include language similar to the following in the methods section of my manuscripts in order to accurately acknowledge data gathering by the ADNI Depression personnel. Depending upon the length and focus of the article, it may be appropriate to include more or less than the example below, however inclusion of some variation of the language shown below is mandatory.

    Data used in the preparation of this article were obtained from the ADNI Depression Project (ADNI-D) database. (ida.loni.usc.edu/login.jsp?project=ADNID). The ADNI Depression project was launched in 2013, led by Principal Investigator R. Scott Mackin, Ph.D. The primary goal of ADNI Depression is to characterize the mechanisms contributing to cognitive impairment and accelerated cognitive decline in Late Life Depression (LLD). .

  3. I will acknowledge funding for the ADNI Depression Project in the support acknowledgement section of the manuscript using language similar to the following:

    Data collection and sharing for this project was funded by the National Institute of Mental Health (NIMHR01MH098062-01A1), and through contributions from Eli Lilly and Company. The grantee organization is the University of California, San Francisco, and the study is coordinated by the Alzheimer's Therapeutic Research Institute at the University of Southern California. ADNI Depression data are disseminated by the Laboratory for Neuro Imaging at the University of Southern California.

  4. I will submit all manuscripts to the ADNI Depression Data and Publications Committee (DPC) prior to submitting to a journal. This review will not be a scientific review, but is intended to ensure that items 7-12 above are correctly implemented. The DPC will maintain confidentiality of the manuscript and will complete its review within 2 weeks.
  5. I will ensure that Investigators who utilize ADNI Depression data use appropriate administrative, physical and technical safeguards to prevent use or disclosure of the data other than as provided for by this Agreement.
  6. I will report any use or disclosure of the data not provided for by this Agreement of which I become aware within 15 days of becoming aware of such use or disclosure.

IMPORTANT NOTE: It is the policy of the ADNI Depression Project to make analyzed data available to investigators as quickly as possible. However, data analysis for this project is expected to take years as methods for analysis of these datasets evolve. Therefore, I understand that any processed data that I download might be preliminary and that results may change as new methods of analysis are implemented. I will familiarize myself with the analysis methods so that I am aware of the limitations of these data prior to using them for scientific purposes.

 Finally, because "preliminary data" will be posted on the database, in the event that I download data from the ADNI Depression database for the purposes of analysis and future publication in the form of abstracts and/or publications, I will note the version of the data I download, and I will check the database to determine if updated data has been provided prior to submission of any material for publication.

 

I understand that failure to abide by these guidelines will result in termination of my privileges to access ADNI Depression data.
I Agree
I Disagree