LONI | ABVIB Data Use Agreement

ABVIB Data Use Agreement

I request access to data collected by the Aging Brain: Vasculature, Ischemia, and Behavior Study (ABVIB) for the purpose of scientific investigation, teaching or the planning of clinical research studies and agree to the following terms.
  1. I will receive access to de-identified data and will not attempt to establish the identity of, or attempt to contact any of the ABVIB subjects.
  2. I will not attempt to make direct contact with ABVIB PIs or staff at sites concerning the specific results of individual subjects.
  3. I will not further disclose these data beyond the uses outlined in this agreement and my data use application and understand that redistribution of data in any manner is prohibited.
  4. I will require anyone on my team who utilizes these data, or anyone with whom I share these data to comply with this data use agreement.
  5. I will accurately provide the requested information for persons who will use these data and the analysis that are planned using these data.
  6. I will respond promptly and accurately to annual requests to update this information.
  7. I will comply with any rules and regulations imposed by my institution and it's institutional review board in requesting these data. If I publish abstracts using data from ABVIB, I agree to the following: I will cite ABVIB as the source of data and the ABVIB funding sources in the abstract as space allows.
  8. Acknowledgement of ABVIB will not be cited in the authorship line of the abstract.
  9. If I publish manuscripts using data from ABVIB, I agree to the following:

    On the by-line of the manuscript, after the named authors, I will include the phrase "for the Aging Brain: Vasculature, Ischemia, and Behavior Study*" with the asterisk referring to the following statement and list of names:

    *Data used in preparation of this article were obtained from the Aging Brain: Vasculature, Ischemia, and Behavior Study (ABVIB). As such, the key investigators within the ABVIB contributed to the design and implementation of ABVIB and/or provided data but did not participate in analysis or writing of this report: Helena C. Chui M.D. (Principal Investigator), Charles C. DeCarli, M.D., William G. Ellis, M.D., William J. Jagust, M.D., Joel H. Kramer, Ph.D., Meng Law, M.D., Dan Mungas Ph,D. Bruce R. Reed, Ph.D., Nerses Sanossian, M.D., Michael W. Weiner, M.D. Wendy J. Mack, Ph.D., Harry V. Vinters, M.D., Chris Zarow, Ph.D., Ling Zheng, Ph.D.

  10. I will include language similar to the following in the methods section of my manuscripts in order to accurately acknowledge data gathering by the ABVIB key personnel. Depending upon the length and focus of the article, it may be appropriate to include more or less than the example below, however inclusion of some variation of the language shown below is mandatory.

    Data used in the preparation of this article were obtained from the Aging Brain: Vasculature, Ischemia, and Behavior Study database (https://ida.loni.usc.edu/login.jsp?project=ABVIB). The ABVIB study was launched in 1994 as a NIA-funded program project led by Principal Investigator Helena C. Chui MD. Data from a second study cohort was started in 2008-2013 and is included in the current database.

    The primary goal of ABVIB was to assess the contributions of cardiovascular risk factors (laboratory studies) and cerebrovascular disease (carotid intima media thickness and retinal vessels) to brain structure and function, alone or in combination with Alzheimer disease. Measures of brain structure and function included serial magnetic resonance imaging (MRI) and neuropsychological testing. Amyloid positron emission tomography (PET) was obtained in a subset of participants.

  11. I will acknowledge funding by the ABVIB in the support acknowledgement section of the manuscript using language similar to the following:

    Data collection and sharing for this project was funded by the National Institutes on Aging (NIA) P01 AG12435.

  12. I will submit all manuscripts to the ABVIB Data and Publications Committee (DPC) prior to submitting to a journal. This review will not be a scientific review, but is intended to ensure that items 7-12 above are correctly implemented. The DPC will maintain confidentiality of the manuscript and will complete its review within 2 weeks.

    I will ensure that Investigators who utilize ABVIB data use appropriate administrative, physical and technical safeguards to prevent use or disclosure of the data other than as provided for by this Agreement.

  13. I will report any use or disclosure of the data not provided for by this Agreement of which I become aware within 15 days of becoming aware of such use or disclosure.
I understand that failure to abide by this agreement will result in termination of my privileges to access ABVIB data.
I Agree
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